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Advocacy & Care

Practical strategies for pacing, documentation, and daily management — empowering patients to collaborate effectively with clinicians.

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Pacing & Energy Envelope

Learn how to manage your limited energy with pacing strategies. Break tasks into smaller parts, monitor PEM warning signs, and balance physical, cognitive, and emotional exertion.

  • Recognize post-exertional malaise (PEM) early.
  • Use heart rate or activity tracking to stay within limits.
  • Prioritize rest and recovery before symptoms worsen.
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Orthostatic Intolerance

Orthostatic intolerance (OI) includes POTS and NMH — common in ME/CFS. Explore conservative and medical options with your clinician to stabilize blood pressure and reduce dizziness.

  • Increase salt and fluid intake (if approved).
  • Use compression garments to support blood flow.
  • Discuss medications like fludrocortisone or midodrine with your doctor.
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Documentation & Letters

Accurate documentation helps secure medical accommodations and disability benefits. Coming soon: downloadable templates and examples of clinician support letters.

  • Track symptom patterns over time.
  • Request medical summaries highlighting functional impact.
  • Document post-exertional crashes clearly.
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Work & School Accommodations

ME/CFS can make full-time attendance or work unsustainable. Reasonable accommodations can help maintain participation and prevent relapse.

  • Request flexible or remote work arrangements.
  • Negotiate reduced hours and rest breaks.
  • Adjust lighting, temperature, and noise levels.

Educational content only — not a substitute for professional medical advice. Always consult a qualified clinician.