About Open ME/CFS
Advancing research, transparency, and collaboration for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome through open science, AI-powered insights, and community-driven data access.
Our Mission
Open ME/CFS exists to accelerate discovery and understanding of ME/CFS by making research freely accessible and human-readable. We bridge patients, scientists, and clinicians through open data, AI-powered summaries, and evidence-based collaboration.
We believe that transparency, empathy, and technology together can shorten the path from study to solution — and ultimately to a cure.
Our Vision
A world where every patient, researcher, and physician can access clear, connected knowledge about ME/CFS — empowering faster treatments, better care, and renewed hope.
What We’re Building
AI-Powered Research Summaries
Our pipeline continuously fetches new PubMed studies, generates scientific and patient-friendly summaries, and organizes them for easy discovery.
Open Database & API
We’re building an accessible, transparent ME/CFS research database — with metadata, citations, and semantic search for the scientific community.
Community Collaboration
We connect patients, advocates, and researchers to share knowledge, insights, and lived experience — because progress requires all voices.
Transparency & Impact
Open ME/CFS operates with a commitment to open-source transparency. All funds received through donations go toward platform maintenance, data hosting, AI processing, and direct support for ME/CFS research organizations.
Donation Allocation
~30 % platform development · 70 % ME/CFS research support
Open by Design
Source code, datasets, and summaries shared freely on GitHub to encourage collaboration and trust.
Join Us in Opening the Future of ME/CFS Research
Support open data, transparency, and patient-driven science.
Donate to Support Research